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| State | Illinois Map It |
| What is/ are your personal experiences with dementia: (check all that apply) |
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| HTML Block | Please select true or false for the follow statements below: |
| Dementia is a typical/ normal part of aging. | False |
| Dementia is caused by diseases of the brain. | True |
| Dementia is not just about having memory problems. It may affect thinking, communication, and ability to carry out everyday tasks. | True |
| There are healthy habits you can adopt to reduce your risk of dementia. | True |
| HTML Block | After this Dementia Friends session, on a scale from Strongly Disagree to Strongly Agree, please select the response you feel reflects your feelings about each statement. |
| I am confident interacting and communicating with people living with dementia. | Disagree |
| It is possible to live well and be engaged with your community with a dementia diagnosis. | Disagree |
| People living with dementia need to feel safe, respected, and included, just like anyone else. | Strongly Agree |
| I am motivated to connect with people living with dementia. | Strongly Agree |
| I am aware of tools and resources in my community to support people living with dementia. | Agree |
| Which of the following personal actions will you take to create a more dementia friendly and welcoming community for people living with dementia and their care partners? Place a check next to each action you will take. Select as many as you like. |
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| Please list three words that you associate with the word “dementia.” | Isolation, darkness, fear |
| Please list any comments or feedback about the Dementia Friends Session that you would like to share. | I think the lack of talk about dementia caused by head injuries, genetics and mental illness was irresponsible. Let's say I have a friend named Dan. He works out, eats a plant-based diet, doesn't drink and is always doin more to learn by taking non-credit classes offered at the local collage. Dan is ALSO a former NFL player (with a number of head injuries), has bipolar disorder and a family history of dementia on both sides of the family. You can't say having good heart health overrides having one or more of those. I also wasn't given any techiques to help in a moment of crisis. Something I also noted was the off-putting tone of the video. I think by telling your audience to make the words more positive almost felt like you were giving us permission to not take it seriously. Even including the man talking about how you need to get up and do the thing was really insensitive. He is allowed to processes his disability, but by having him state that in the video gave off the vibe that people (both with dementia and who are supporting people with dementia) should not grieve the life they do not have. You're allowed to be upset and sad. I also think not having a person who was not futher along in their dementia journey in the interviews was in poor taste. I was also confused with reusing the segments with the interviews in a different segment and calling it a different part. Why have that part over again with out addtional context or resources being said? Did something happen in post-production and it was a error? I'm not sure why you were reluctant about talking about the sadness or the negative feelings. I know from a disability viewpoint, talking about the more uncomfortable/scary moments are more impactful. They make me feel even more prepared and helps me understand the importance of what I am learning. |
| Do we have permission to contact you for a 3-month follow-up survey? | Yes |